![]() Each newsletter provides information on diagnosis, effective treatments, resources, updates detailing new narcolepsy research, ideas for coping, personal stories and interviews, industry news, legal and insurance guidance and much more. The newsletter is distributed to the membership as well as many non-member sleep centers and professionals. Newsletter, membership & scholarships: our quarterly newsletter, "the network" is for many people the only source of information about narcolepsy. Narcolepsy network continued outreach to healthcare providers and educators in 2014, including an initiative to educate medical professionals with two posters that were presented at the sleep 2014 meeting, which is attended, by approximately 5,000 sleep professionals. The second annual narcolepsy bed race in virginia also reached more than 60,000 in southwest virginia. Fun awareness events continued, including the new york dream big walk, which had more than 145 walkers raise awareness along the hudson river in new york city. Nn's facebook and twitter pages, with more than 6,000 followers, and an active facebook support group with nearly 5,000 members continued to bring narcolepsy news and information to people around the world. Creation and distribution of educational materials and brochures, maintenance of website, interactive forum discussion and social media outreach. Public information: information provided for public, academic, medical, and other persons interested in obtaining information about narcolepsy, its causes, symptoms and treatments. The annual membership meeting was held at the conference and nn presented awards to two researchers. The conference offered special programming for children and young adults with narcolepsy as well as sessions on research treatment and advocacy. Nearly 450 people with narcolepsy and their supporters attended from all over the world. In 2014, nn hosted the 29th annual conference in denver, colorado. Graduate students and professionals in health, education, science and government can get a unique perspective on narcolepsy and the effect it has on individuals and families. A selection of workshops, lectures, support forums, energizers and creative activities are some of the offerings at the conference. Programs: Conference: each year narcolepsy network (nn) hosts a conference in a different city, which creates a unique gathering for, support, education, awareness building, and networking among people affected by narcolepsy. Geographic areas served: The United States Target demographics: people with narcolepsy ![]()
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